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New Study: Understanding caregiver experiences for caring for a young child with T1DWe know that caring for a child with type 1 diabetes (T1D) can be incredibly challenging. We also know that caregivers of children with T1D experience high levels of distress and anxiety. We are looking to better understand what this experience is like for caregivers so that we can identify
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Diabetes Nutrition VideosWhat is a Carboyhdrate - Diabetes Nutrition Video We know there is a lot of information out there about food and nutrition and that parents want to
View our wide range of resources including fact sheets, and help understanding autism.
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Building the foundations of communicationSenior Speech Pathologist Sally Grauaug looks at how to build the foundations of communication with your child.
Research
Beyond Seizures as an Outcome Measure: A Global Severity Scoring System for CDKL5 Deficiency DisorderCDKL5 deficiency disorder (CDD) is a rare developmental and epileptic encephalopathy (DEE) associated with multiple impairments and comorbidities. Outcome measures for disease-modifying clinical trials for DEEs should measurably capture a spectrum of caregiver priorities and be externally validated.
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Convalescent plasma in hospitalised patients with COVID-19Convalscent plasma (CP) was identified as a potential therapy for COVID-19 available early in the pandemic.
Consumer Representative Lauren Hope-Blyth
Research
A meta-analytic review and conceptual model of the antecedents and outcomes of goal adjustment in response to striving difficultiesThere is growing interest in how and why individuals adjust their goals in response to difficulties encountered during goal striving and the outcomes of such adjustments; however, research on these topics is fragmented across theoretical perspectives and life domains.
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Safe use of mobile phones with T1DThe advancement of technology to assist the daily routine of diabetes is extremely helpful. However, it is important to create clear boundaries in the use of technology. Our social work team have some great tips to set up healthy routines.