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For thousands of WA children living with undiagnosed diseases, it’s hope.
Thanks to research, a six -second test can get the answers that could save a child’s life.
The Kids Research Institute Australia disability researcher, Associate Professor Helen Leonard, played an important role in the identification of the differences that define CDD, thanks to her extensive experience researching Rett syndrome and running an Australian online database tracking Rett cases.
Research
#TraumaTok-TikTok Videos Relating to Trauma: Content AnalysisExperiencing a traumatic event can significantly impact mental and emotional well-being. Social media platforms offer spaces for sharing stories, seeking support, and accessing psychoeducation. TikTok (ByteDance), a rapidly growing social media platform, is increasingly used for advice, validation, and information, although the content of this requires further study.
Research
Low-intensity parent- and clinician-delivered support for young autistic children in Aotearoa New Zealand: a randomised controlled trialAotearoa New Zealand does not provide publicly-funded intensive autism support. While parent-mediated supports are promising, children and families may also benefit from direct clinician support. We tested the efficacy of a low-intensity programme involving parent- and clinician-delivered support for autistic children.
Research
Fine-grained Fidgety Movement Classification using Active LearningTypically developing infants, between the corrected age of 9-20 weeks, produce fidgety movements. These movements can be identified with the General Movement Assessment, but their identification requires trained professionals to conduct the assessment from video recordings.
Research
Costs of primary healthcare presentations and hospital admissions for scabies and related skin infections in Fiji, 2018–2019Scabies and related bacterial skin and soft tissue infections are highly prevalent in many tropical, low- and middle-income settings. These skin conditions contribute to higher healthcare costs and burdens on healthcare systems.
Research
The CliniBank Study: A research project to improve future clinical supports for children experiencing developmental difficultiesAndrew Gemma Gail Videos Whitehouse Watch and listen to Andrew Upson Alvares PhD BSc MClinAud MBA PhD Deputy Director (Research); Angela Wright
Learn how new technology is fast-tracking diagnoses for kids with rare diseases.
Jimmy’s battle with RSV reminds us that research can change young lives.