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Longitudinal bone mineral content and density in Rett syndrome and their contributing factors

This study measured changes in bone density over time using dual energy x-ray absorptiometry (DEXA). Lean tissue or muscle mass (LTM) was also measured.

Using a large international sample to investigate epilepsy in Rett syndrome

Using a large sample size, we investigated the relationships between epilepsy and genotype, and the impact of medications used on seizure management.

Seizures in Rett syndrome: an overview from a one-year calendar study

We collected information on a monthly basis on the patterns of seizures and medications of 162 girls in the Australian Rett Syndrome study over a calendar year.

Publications

Publications from 2016 dating back to 1993 of AussieRett researchers, showing the research work into Rett syndrome and related disorders.

Resources

View our wide range of resources including fact sheets, and help understanding autism.

News & Events

OTs and their tools

For Occupational Therapy Week, we asked our OTs to share their favourite resource and how they like to use it.

News & Events

Service agreements

We are currently working through several clinical audits to ensure that we are meeting our service delivery standards and governance requirements. As part of this, we have audited our Service Agreements to ensure that we have a signed agreement on file for all our clients. This agreement is an NDIS

News & Events

Frangipani Family Day 2023

CliniKids held Frangipani Family Day recently – an event organised to honour the wonderful contribution of its much loved and dearly missed colleague, the late Kate Sorensen.

News & Events

Celebrating our OTs

To celebrate World Occupational Therapy (OT) day, we asked our Occupational Therapists to describe what OT means to them.

News & Events

Research at CliniKids

At CliniKids, it is important that the services we offer are informed by the children and families that utilise our services.