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News & Events

WA Near Miss Awards drive critical research forward

Five researchers from The Kids Research Institute Australia have secured vital funding support through the WA Near Miss Awards, allowing them to continue innovative health projects that narrowly missed out on national funding.

News & Events

Announcing our 2025 Premier’s Science Awards finalists

Eight outstanding researchers from The Kids Research Institute Australia and the Institute-led Broome STEM Festival are finalists in the 2025 Premier’s Science Awards.

News & Events

New additions to The Kids Executive to help reimagine research

Two new members have joined The Kids Research Institute Australia Executive team, each tasked with helping the Institute realise its vision to drive greater health impact where kids and families need it most, sooner.

News & Events

STEM festival is coming to Kalgoorlie this August

Free Family-Friendly Science Fun During National Science Week 2025. Get ready for an awesome adventure into the world of Science, Technology, Engineering and Mathematics!

Aspects of speech-language abilities are influenced by MECP2 mutation type in girls with Rett syndrome

This study explored relationships between speech and language abilities in girls with Rett syndrome and how they may be affected by the type of genetic mutation

Gastrointestinal dysmotility in Rett syndrome

We reviewed literature and RettNet to explore firsthand perspectives of gastrointestinal issues in Rett Syndrome, then developed recommendations with experts.

Conceptualizing a quality of life framework for girls with Rett syndrome using qualitative methods

We interviewed 21 families with a daughter with Rett Syndrome about aspects of their daughters' lives that were satisfying or challenging to them.

Longitudinal bone mineral content and density in Rett syndrome and their contributing factors

This study measured changes in bone density over time using dual energy x-ray absorptiometry (DEXA). Lean tissue or muscle mass (LTM) was also measured.

Using a large international sample to investigate epilepsy in Rett syndrome

Using a large sample size, we investigated the relationships between epilepsy and genotype, and the impact of medications used on seizure management.

Seizures in Rett syndrome: an overview from a one-year calendar study

We collected information on a monthly basis on the patterns of seizures and medications of 162 girls in the Australian Rett Syndrome study over a calendar year.