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Research

Early diet quality in a longitudinal study of Australian children: Associations with nutrition and body mass index later in childhood and adolescence

The aims of this study were to determine whether early childhood dietary quality was associated with infant and adolescent nutrition, and body mass index.

Research

Father mental health during the early parenting period: results of an Australian population based longitudinal study

The primary objective of this study was to report on the occurrence of mental health difficulties for a large national sample of Australian fathers of children.

Research

Patterns of attendance of children under 12 years at school dental service in Western Australia

The aim of this study was to investigate patterns of attendance at School Dental Service and reasons for attendance for children in the Perth Metropolitan area.

Research

Universal paediatric refugee health screening

In this note we briefly outline our recent experience with paediatric refugee screening in Western Australia (WA) based on the frameworks outlined previously.

Assessment and management of nutrition and growth in Rett syndrome

We developed recommendations to assess and manage issues relating to poor growth and weight gain in Rett syndrome, including consideration of gastrostomy.

Experience of gastrostomy using a quality care framework: The example of Rett syndrome

We investigated our data from family questionnaires to see how feeding difficulties related to age, the type of MECP2 mutation, and the use of gastrostomy.

Level of purposeful hand function as a marker of clinical severity in Rett syndrome

We developed a measure of hand function, and then investigated relationships between hand function, type of MECP2 mutation, age and severity of symptoms.

Parental experiences of scoliosis management

We investigated what parents thought about the ways to manage scoliosis and what they thought they needed to help them better manage their daughter's scoliosis.

Caring for caregivers

When you build routines into your day to increase uptime, it doesn’t only affect the person with Rett syndrome; it affects the whole family.

Participate in Research

AussieRett is the Australian Rett syndrome research study. We collect information on Australian individuals with Rett syndrome from both families and clinicians