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About The Autism Register

The Autism Register Team are running short, informative workshops at your organisation or at a location close to you. We aim to get your feedback about the new Autism Register, answer your questions and demonstrate the online portal.

IDEA is one of the few population-based resources in the world dedicated to intellectual disability. The IDEA database contains information on all children born in Western Australia since 1983 who have been identified with having an intellectual disability. Individuals with autism spectrum disorder, both with and without intellectual disability, are also included in the database. Deidentified information is accessed from the Department of Communities WA, the WA Department of Education, and the National Disability Insurance Agency (NDIA) to create the database. IDEA can be linked to other datasets to facilitate research into the determinants, outcomes and service needs of children and adults with intellectual disability. Researchers can apply for such linked data, available in a de-identified format under approval from an ethics committee.

Autism spectrum disorder (ASD) is a complex neurodevelopmental condition whose biological basis is yet to be elucidated. The Australian Autism Biobank (AAB) is an initiative of the Cooperative Research Centre for Living with Autism (Autism CRC) to establish an Australian resource of biospecimens, phenotypes and genomic data for research on autism.

Evidence suggests that individuals with autism spectrum disorder have increased rates of co-occurring psychosis and/or bipolar disorder. Considering the peak age of onset for psychosis and bipolar disorder occurs in adulthood, we investigated the co-occurrence of these disorders in adults with autism.

If there’s one thing modern researchers and health professionals now understand, it’s that for so many diseases and conditions affecting children and adolescents, early intervention is crucial.

Researchers from The Kids Research Institute Australia, working with the Autism CRC, have led the development of the National Guideline for the Assessment and Diagnosis of Autism Spectrum Disorder in Australia which was launched today.

Western Australian babies and children with autism and developmental delay will be able to access world-first therapies and interventions backed by the latest research, thanks a unique clinical service developed by The Kids Research Institute Australia.

PACT is a communication therapy at CliniKids

Australia’s first draft national guideline for autism diagnosis has today been released for public consultation.