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Measuring use and cost of health sector and related care in a population of girls and young women with Rett syndromeThis study measured use and cost of health sector and related services in Rett syndrome and effects of socio-demographic, clinical severity and genetic...
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A new method of prenatal alcohol classification accounting for dose, pattern and timing of exposure:When examining the association between prenatal alcohol exposure and fetal effects, the timing and intensity of exposure have been ignored in epidemiological st

The Quality of Life Inventory - Disability
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Working towards a shared framework in the diagnosis of neurodevelopmental disorders in Australia: A Gap AnalysisAmy Andrew Carol Jacinta Videos Finlay-Jones Whitehouse Watch and listen to Andrew Bower Freeman BPsych(Hons), MPsych(Clinical), MHealthEcon, PhD (
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Talking, Hearing, Understanding, Knowing: A qualitative exploration of the experiences of justice-involved youth undergoing assessment for Fetal Alcohol Spectrum Disorder in a juvenile detention centreCarol Melissa Bower O'Donnell MBBS MSc PhD FAFPHM DLSHTM FPHA BPsych (Hons), MPsych, GradDip Ed, PhD Honorary Emeritus Fellow Honorary Research
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Using participatory design to create impactful health promotion messages regarding alcohol use in pregnancyInvestigators: Tess Fletcher The overarching aim of this proposed research is to explore the limitations of existing alcohol and pregnancy messages
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FASD Hub AustraliaCarol Bower MBBS MSc PhD FAFPHM DLSHTM FPHA Honorary Emeritus Fellow 08 6319 1813 carol.bower@thekids.org.au Senior Principal Research Fellow;
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Messages that increase women's intentions to abstain from alcohol during pregnancyPublic awareness-raising campaigns targeting alcohol use during pregnancy are an important part of preventing prenatal alcohol exposure and FASD.
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Promoting abstinence from alcohol during pregnancy: Implications from formative researchThis research developed messages to promote abstinence from alcohol during pregnancy and identified elements that enhance message persuasiveness.
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Recommendations from a consensus development workshop on the diagnosis of fetal alcohol spectrum disorders in Australia.Fetal alcohol spectrum disorders (FASD) are underdiagnosed in Australia, and health professionals have endorsed the need for national guidelines for diagnosis.