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The diagnostic odyssey for children living with a rare disease – Caregiver and patient perspectives: A narrative review with recommendations

Children living with a rare disease often endure a lengthy journey to diagnosis, commonly referred to as a diagnostic odyssey. This journey significantly impacts their physical, mental and financial wellbeing, in addition to that of their families. The diagnostic odyssey is often characterised by anxiety and stress surrounding the uncertainty of the future. This is experienced by the patient as well as by the family.

Antibiotics or watchful waiting for acute otitis media in urban Aboriginal and Torres Strait Islander children?

Chris Valerie Brennan-Jones Swift PhD Head, Ear and Hearing Health Aboriginal Co-Director, Djaalinj Waakinj Centre for Ear and Hearing Health;

Changing climates, compounding challenges: A participatory study on how disasters affect the sexual and reproductive health and rights of young people in Fiji

Pacific youth are at the forefront of the climate crisis, which has important implications for their health and rights. Youth in Fiji currently bear a disproportionate burden of poor experiences and outcomes related to their sexual and reproductive health and rights (SRHR). There is limited information about how the increasing climate impacts may affect their SRHR, and what the implications may be for climate action and disaster risk reduction.

International Pediatric COVID-19 Severity over the Course of the Pandemic

Multiple SARS-CoV-2 variants have emerged over the COVID-19 pandemic. The implications for COVID-19 severity in children worldwide are unclear. The objective was to determine whether the dominant circulating SARS-CoV-2 variants of concern (VOCs) were associated with differences in COVID-19 severity among hospitalized children.

Researchers to focus on MS inflammation puzzle

The Kids Research Institute Australia researchers will seek to better understand the relationship between antibodies and inflammation in people with multiple sclerosis (MS), thanks to a generous grant from MS Research Australia.

How the Australian bushfires can impact your family’s physical health

Bushfires can have a considerable impact on our physical and mental health, with some symptoms lasting long after the blaze is extinguished. And our children are amongst the most vulnerable.

The Kids Research Institute Australia welcomes “top-up” funding for Medical Research Future Fund

Perth’s The Kids Research Institute Australia has welcomed a major funding boost for the Medical Research Future Fund (MRFF).

InFocus Interview: Kirsten Hancock on multigenerational disadvantage in Australia

An InFocus Research Interview with Kirsten Hancock of the Human Capability Team at The Kids Research Institute Australia on multigenerational disadvantage in Australia.

Harvard Professor captivates at Annual Community Lecture

Professor Bloom used his time to make a powerful case for the idea that 'healthier means wealthier' at the The Kids Annual Community Lecture for 2017

CoLab scholarship to help drive better access to support services

Curtin University researcher Belinda Cuomo is one of the first recipients of a CoLab Top-Up Scholarship.