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Research
Lived experiences of the diagnostic assessment process for fetal alcohol spectrum disorder: A systematic review of qualitative evidenceEarly assessment and diagnosis of FASD are crucial in providing therapeutic interventions that aim to enhance meaningful participation and quality of life for individuals and their families, while reducing psychosocial difficulties that may arise during adolescence and adulthood. Individuals with lived experience of FASD have expertise based on their own lives and family needs. Their insights into the assessment and diagnostic process are valuable for improving service delivery and informing the provision of meaningful, person- and family-centered care. To date, reviews have focused broadly on the experiences of living with FASD.
Research
Asking QUestions about Alcohol in pregnancy (AQUA): A longitudinal cohort study of fetal effects of low to moderate alcohol exposureUsing detailed, prospective methods of data collection, the AQUA study will comprehensively examine the effects of low to moderate alcohol consumption...
News & Events
Making FASD History in the Pilbara: celebrating International FASD Awareness DayTo mark International FASD Awareness Day, The Kids will launch a series of health promotion videos that feature local Aboriginal community members.
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News & Events
Flagship award for folate champion Carol BowerOne of The Kids Research Institute Australia’s most influential researchers, who has played a seminal role in birth defect research and advocacy over a four-decade career, has won the Peter Wills Medal – the Australian research community’s flagship award.
News & Events
NHMRC Fellowships awarded to support child health researchFour leading The Kids Research Institute Australia researchers have been awarded Fellowships from the National Health and Medical Research Council (NHMRC).
News & Events
Community is tackling FAS in the Fitzroy ValleyAmong the highest rates of Fetal Alcohol Syndrome (FAS) worldwide have been reported by Aboriginal community leaders in the remote Fitzroy Valley.
Research
Collaborating with consumer and community representatives in health and medical research in Australia:The objective of this tudy was to collaborate with consumer and community representatives in the Alcohol and Pregnancy Project from 2006-2008