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The Sibling Snapshot Project

Be involved in the Sibling Snapshot Project! Researchers from The Kids Research Institute Australia are conducting research which explores the unique

The Sibling Support Study

Join a Focus Group for the Sibling Support Study! Researchers from The Kids Research Institute Australia are conducting research which explores the

News & Events

More than 50% of women drink alcohol while pregnant

A new study has found that more than half of West Australian women surveyed drank alcohol during pregnancy.

Rural Cancer Siblings

We want to hear from siblings living outside of Australian cities!

Research

Lived experiences of the diagnostic assessment process for fetal alcohol spectrum disorder: A systematic review of qualitative evidence

Early assessment and diagnosis of FASD are crucial in providing therapeutic interventions that aim to enhance meaningful participation and quality of life for individuals and their families, while reducing psychosocial difficulties that may arise during adolescence and adulthood. Individuals with lived experience of FASD have expertise based on their own lives and family needs. Their insights into the assessment and diagnostic process are valuable for improving service delivery and informing the provision of meaningful, person- and family-centered care. To date, reviews have focused broadly on the experiences of living with FASD.

Research

Evaluation of the Fetal Alcohol Spectrum Disorder Hub Australia website

To evaluate use and utility of the Fetal Alcohol Spectrum Disorder (FASD) Hub Australia website. 

Research

The provision of alcohol and breastfeeding information by maternal health practitioners in the Australian setting

Despite the existence of a national alcohol guideline for breastfeeding women, maternal health practitioners are not incorporating this advice

Research

Fetal Alcohol Spectrum Disorder

Supports healthcare professionals to understand how to make a diagnosis of FASD and to provide support for those diagnosed with FASD