Search
Research
A modified Delphi study of screening for fetal alcohol spectrum disorders in AustraliaThe aim of this study was to identify health professionals' perceptions about screening for fetal alcohol spectrum disorders (FASD) in Australia.
Research
Prevalence of fetal alcohol syndrome in a population-based sample of children living in remote Australia: The Lililwan Project.Aboriginal leaders concerned about high rates of alcohol use in pregnancy invited researchers to determine the prevalence of fetal alcohol syndrome (FAS) and...
News & Events
Making FASD history in the Fitzroy ValleyThe Make FASD History campaign, led by community researchers and The Kids Research Institute Australia, has made huge inroads into prevention, diagnosis and therapy.
News & Events
New project to make FASD history in the PilbaraA new project aimed at reducing Fetal Alcohol Spectrum Disorder (FASD) in the Pilbara has been launched today in South Hedland.
News & Events
The Kids researchers honoured at Public Health Association AwardsTwo The Kids researchers working to improve the health & wellbeing of Aboriginal children & their families have both been honoured at the PHAA Awards.
News & Events
More than 50% of women drink alcohol while pregnantA new study has found that more than half of West Australian women surveyed drank alcohol during pregnancy.
Guide our sibling research!
We want to hear from siblings living outside of Australian cities!
Research
Lived experiences of the diagnostic assessment process for fetal alcohol spectrum disorder: A systematic review of qualitative evidenceEarly assessment and diagnosis of FASD are crucial in providing therapeutic interventions that aim to enhance meaningful participation and quality of life for individuals and their families, while reducing psychosocial difficulties that may arise during adolescence and adulthood. Individuals with lived experience of FASD have expertise based on their own lives and family needs. Their insights into the assessment and diagnostic process are valuable for improving service delivery and informing the provision of meaningful, person- and family-centered care. To date, reviews have focused broadly on the experiences of living with FASD.