At The Kids Research Institute Australia, we've been thinking of the kids for 35 years. We are finding the answers to some of the biggest problems facing the health and wellbeing of children and families. Our Research Themes host defined programs of work where the Institute has clear strengths and capacity. Our overarching commitment to First Nations Health and Equity is embedded across all our work and features as a core consideration in each Research Theme. The Institute is committed to ending the disparity in health and wellbeing outcomes between Aboriginal and non-Aboriginal kids and families.
Discover what drives us as an organisation. Learn about history and the impact of the Institute along with the amazing ambitious goals we've achieved so far in the field of children's research.
Join us! Get involved with The Kids through providing a donation, volunteering your time, participating in important research, or with a professional commitment to the institute.
Different audiences rely on us for very different things. Whether you're a valued donor, curious professional researcher, inquisitive member of the public, or a corporate supplier looking to offer support - we've collated the resources you need.
Discover . • Prevent . • Cure .
There was a problem with your search. Please try again later.
Searching
No results yet
Citation:Junaid M, Downs J, Groza T, Lassmann T, Baker S, et al. The United Nations convention on rare diseases—A framework for research prioritization. Front Public Health. 2025;13.
Keywords:Orphan drug; rare disease (RD); rare disease diagnosis; rare disease registry framework; rare disease research
