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Psychometric validation of the quality of life Inventory − Disability (QI-Disability) among patients with Lennox-Gastaut syndrome and Dravet syndrome

To evaluate the psychometric properties of the Quality of Life Inventory -Disability (QI-Disability) for individuals with Dravet syndrome (DS) or Lennox-Gastaut syndrome (LGS), two rare developmental and epileptic encephalopathy conditions.

Citation:
Shah D, Jacoby P, Doll H, Do H, …….. Downs J. Psychometric validation of the quality of life Inventory − Disability (QI-Disability) among patients with Lennox-Gastaut syndrome and Dravet syndrome. Epilepsy Behav. 2026;175.

Keywords:
Developmental and epileptic encephalopathy; Dravet syndrome; EQ-5D-5L; Lennox-Gastaut syndrome; Psychometric validation; QI- Disability; Quality of life

Abstract:
To evaluate the psychometric properties of the Quality of Life Inventory -Disability (QI-Disability) for individuals with Dravet syndrome (DS) or Lennox-Gastaut syndrome (LGS), two rare developmental and epileptic encephalopathy conditions.